The Leukodystrophy Care Network (LCN) is a community of affected families, organizations and medical providers committed to revolutionizing the health and quality of life of individuals affected by Leukodystrophies with proactive, innovative, and comprehensive medical care standards and specialized centers.
Currently, UF Shands is the only center within the state of Florida providing these services to patients. The program is run by Gustavo Maegawa, M.D. and Kia Fuller, MPH, Ph.D in Genetics and S. Parrish Winessett, M.D. in Neurology.